Genetic Epilepsy Foundation (EDRPOU code 45916792) is a platform that brings together patient and civil society organizations, medical experts, and families to advocate for the rights of children and adults living with genetic epilepsies.<\/p>\n
We work to improve access to modern diagnostics and treatment, raise awareness about genetic epilepsies in Ukraine, and develop an effective support system for patients and their families.<\/p>\n
\ud83c\udfaf Our Mission<\/p>\n
To improve the quality of life of people living with genetic epilepsies by expanding access to treatment, knowledge, and comprehensive support.<\/p>\n
\ud83c\udf0d Our Vision<\/p>\n
We aim to build a system where:
\n\u2022 genetic epilepsies are diagnosed in a timely manner
\n\u2022 patients have access to modern and effective therapies
\n\u2022 families are not left alone with their diagnosis<\/p>\n
\ud83d\udca1 Our Areas of Work<\/p>\n
\u2022 advocacy for access to innovative medicines
\n\u2022 collaboration with international pharmaceutical companies
\n\u2022 support for patients and their families
\n\u2022 organization of educational events, conferences, and professional platforms
\n\u2022 development and strengthening of the patient community<\/p>\n
\ud83e\udd1d We Are Open to Collaboration<\/p>\n
We actively collaborate with:
\n\u2022 international organizations
\n\u2022 pharmaceutical companies
\n\u2022 healthcare professionals and researchers
\n\u2022 donors and charitable foundations<\/p>\n
Together, we can improve the lives of people living with genetic epilepsies.<\/p>","protected":false},"excerpt":{"rendered":"
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