{"id":4258,"date":"2026-04-19T19:45:39","date_gmt":"2026-04-19T19:45:39","guid":{"rendered":"https:\/\/genepi.org.ua\/?p=4258"},"modified":"2026-04-19T20:18:25","modified_gmt":"2026-04-19T20:18:25","slug":"ukrainian-dravet-syndrome-scn1a-forum-2026","status":"publish","type":"post","link":"https:\/\/genepi.org.ua\/en\/ukrainian-dravet-syndrome-scn1a-forum-2026\/","title":{"rendered":"Ukrainian Dravet Syndrome & SCN1A Forum 2026"},"content":{"rendered":"

Ukrainian Dravet Syndrome & SCN1A Forum 2026<\/p>\n

Registration is now open for the Ukrainian Dravet Syndrome & SCN1A Forum 2026 \u2014 an international online conference dedicated to improving awareness, diagnosis, and access to treatment for Dravet syndrome and SCN1A-related epilepsies.<\/p>\n

\ud83d\udcc5 Date: June 19, 2026
\n\ud83c\udf0d Format: Online<\/p>\n

The conference will serve as one of the first dedicated platforms in Ukraine bringing together:
\nclinicians (neurologists, pediatric neurologists, pediatricians)
\ngeneticists and researchers
\nmedical institutions
\npatient organizations
\ninternational experts<\/p>\n

\ud83d\udd2c Conference program includes:
\ninternational expert sessions with leading specialists
\ngenetics-focused block (SCN1A and related conditions)
\npresentations from Ukrainian clinicians and real-world cases
\npatient voice and lived experiences
\npanel discussion with policymakers, clinicians, pharma, and NGOs
\n\ud83d\udc49 The forum aims not only to share knowledge, but to contribute to shaping solutions for improving access to diagnosis and treatment in Ukraine.<\/p>\n

\ud83d\udccc Participation
\nParticipation is free of charge upon prior registration.<\/p>\n

\ud83d\udd17 Participant registration:
\nhttps:\/\/docs.google.com\/forms\/d\/1k2nqf7-DtGas1BzV0iU-zgZB2dVZS6d5edEdZx8af_U\/edit<\/a><\/p>\n

\ud83c\udfa4 Call for speakers
\nWe also invite experts to apply as speakers:<\/p>\n

\ud83d\udd17 Speaker application:
\nhttps:\/\/docs.google.com\/forms\/d\/1v24JrQAZPvabsPvMX4KpkjEvFLe6w2s7JA9u1iRy2ms\/edit<\/a><\/p>\n

All speakers will receive certificates of participation in the international conference.
\n\ud83e\udd1d About the initiative
\nThe conference is organized by Access to Life NGO in collaboration with Ukrainian and international partners, aiming to strengthen medical expertise and improve access to care for patients with rare diseases.<\/p>","protected":false},"excerpt":{"rendered":"

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[…]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"site-sidebar-layout":"default","site-content-layout":"","ast-site-content-layout":"default","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"","ast-breadcrumbs-content":"","ast-featured-img":"","footer-sml-layout":"","ast-disable-related-posts":"","theme-transparent-header-meta":"","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"set","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center 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