{"id":4559,"date":"2026-06-14T15:36:29","date_gmt":"2026-06-14T15:36:29","guid":{"rendered":"https:\/\/genepi.org.ua\/?p=4559"},"modified":"2026-06-14T15:36:29","modified_gmt":"2026-06-14T15:36:29","slug":"%d0%bf%d1%80%d0%b5%d0%b4%d1%81%d1%82%d0%b0%d0%b2%d0%bb%d1%8f%d1%94%d0%bc%d0%be-%d1%81%d0%bf%d1%96%d0%ba%d0%b5%d1%80%d0%ba%d1%83-%d1%8f%d0%ba%d0%b0-%d0%bf%d1%80%d0%b8%d0%b2%d0%b5%d1%80%d1%82%d0%b0","status":"publish","type":"post","link":"https:\/\/genepi.org.ua\/en\/%d0%bf%d1%80%d0%b5%d0%b4%d1%81%d1%82%d0%b0%d0%b2%d0%bb%d1%8f%d1%94%d0%bc%d0%be-%d1%81%d0%bf%d1%96%d0%ba%d0%b5%d1%80%d0%ba%d1%83-%d1%8f%d0%ba%d0%b0-%d0%bf%d1%80%d0%b8%d0%b2%d0%b5%d1%80%d1%82%d0%b0\/","title":{"rendered":"\u041f\u0440\u0435\u0434\u0441\u0442\u0430\u0432\u043b\u044f\u0454\u043c\u043e \u0441\u043f\u0456\u043a\u0435\u0440\u043a\u0443, \u044f\u043a\u0430 \u043f\u0440\u0438\u0432\u0435\u0440\u0442\u0430\u0454 \u0443\u0432\u0430\u0433\u0443 \u0434\u043e \u043d\u0430\u0434\u0437\u0432\u0438\u0447\u0430\u0439\u043d\u043e \u0432\u0430\u0436\u043b\u0438\u0432\u043e\u0457, \u0430\u043b\u0435 \u0447\u0430\u0441\u0442\u043e \u043d\u0435\u0434\u043e\u043e\u0446\u0456\u043d\u0435\u043d\u043e\u0457 \u0442\u0435\u043c\u0438 \u2014 \u0436\u0438\u0442\u0442\u044f \u0456\u0437 \u0441\u0438\u043d\u0434\u0440\u043e\u043c\u043e\u043c \u0414\u0440\u0430\u0432\u0435 \u0443 \u0434\u043e\u0440\u043e\u0441\u043b\u043e\u043c\u0443 \u0432\u0456\u0446\u0456 – \u0410\u043b\u0456\u043d\u0430 \u0406\u0432\u0430\u043d\u044e\u043a, \u043d\u0435\u0432\u0440\u043e\u043b\u043e\u0433 \u0434\u043e\u0440\u043e\u0441\u043b\u043e\u0457 \u043f\u0440\u0430\u043a\u0442\u0438\u043a\u0438, \u0434\u043e\u0441\u043b\u0456\u0434\u043d\u0438\u0446\u044f \u0443 \u0441\u0444\u0435\u0440\u0456 \u0433\u0435\u043d\u0435\u0442\u0438\u0447\u043d\u0438\u0445 \u0435\u043f\u0456\u043b\u0435\u043f\u0441\u0456\u0439. Mayo Clinic, Jacksonville, Florida, \u0421\u0428\u0410"},"content":{"rendered":"

\u041f\u0440\u043e\u0434\u043e\u0432\u0436\u0443\u0454\u043c\u043e \u0437\u043d\u0430\u0439\u043e\u043c\u0438\u0442\u0438 \u0432\u0430\u0441 \u0437\u0456 \u0441\u043f\u0456\u043a\u0435\u0440\u0430\u043c\u0438 Ukrainian Dravet Syndrome & SCN1A Forum 2026 \ud83c\uddfa\ud83c\udde6\ud83c\udf0d<\/p>\n

\u041f\u0440\u0435\u0434\u0441\u0442\u0430\u0432\u043b\u044f\u0454\u043c\u043e \u0441\u043f\u0456\u043a\u0435\u0440\u043a\u0443, \u044f\u043a\u0430 \u043f\u0440\u0438\u0432\u0435\u0440\u0442\u0430\u0454 \u0443\u0432\u0430\u0433\u0443 \u0434\u043e \u043d\u0430\u0434\u0437\u0432\u0438\u0447\u0430\u0439\u043d\u043e \u0432\u0430\u0436\u043b\u0438\u0432\u043e\u0457, \u0430\u043b\u0435 \u0447\u0430\u0441\u0442\u043e \u043d\u0435\u0434\u043e\u043e\u0446\u0456\u043d\u0435\u043d\u043e\u0457 \u0442\u0435\u043c\u0438 \u2014 \u0436\u0438\u0442\u0442\u044f \u0456\u0437 \u0441\u0438\u043d\u0434\u0440\u043e\u043c\u043e\u043c \u0414\u0440\u0430\u0432\u0435 \u0443 \u0434\u043e\u0440\u043e\u0441\u043b\u043e\u043c\u0443 \u0432\u0456\u0446\u0456.<\/p>\n

\ud83d\udc99 \u0410\u043b\u0456\u043d\u0430 \u0406\u0432\u0430\u043d\u044e\u043a Alina Ivaniuk
\n\u041d\u0435\u0432\u0440\u043e\u043b\u043e\u0433 \u0434\u043e\u0440\u043e\u0441\u043b\u043e\u0457 \u043f\u0440\u0430\u043a\u0442\u0438\u043a\u0438, \u0434\u043e\u0441\u043b\u0456\u0434\u043d\u0438\u0446\u044f \u0443 \u0441\u0444\u0435\u0440\u0456 \u0433\u0435\u043d\u0435\u0442\u0438\u0447\u043d\u0438\u0445 \u0435\u043f\u0456\u043b\u0435\u043f\u0441\u0456\u0439
\nMayo Clinic, Jacksonville, Florida, \u0421\u0428\u0410<\/p>\n

\ud83d\udd39 \u0421\u043f\u0435\u0446\u0456\u0430\u043b\u0456\u0437\u0443\u0454\u0442\u044c\u0441\u044f \u043d\u0430 \u0433\u0435\u043d\u0435\u0442\u0438\u0447\u043d\u0438\u0445 \u0435\u043f\u0456\u043b\u0435\u043f\u0441\u0456\u044f\u0445 \u0442\u0430 \u043c\u043e\u043d\u043e\u0433\u0435\u043d\u043d\u0438\u0445 \u0435\u043f\u0456\u043b\u0435\u043f\u0442\u0438\u0447\u043d\u0438\u0445 \u0435\u043d\u0446\u0435\u0444\u0430\u043b\u043e\u043f\u0430\u0442\u0456\u044f\u0445 \u0440\u043e\u0437\u0432\u0438\u0442\u043a\u0443
\n\ud83d\udd39 \u0414\u043e\u0441\u043b\u0456\u0434\u0436\u0443\u0454 \u043f\u0440\u0438\u0440\u043e\u0434\u043d\u0438\u0439 \u043f\u0435\u0440\u0435\u0431\u0456\u0433 \u0437\u0430\u0445\u0432\u043e\u0440\u044e\u0432\u0430\u043d\u043d\u044f, \u0435\u043b\u0435\u043a\u0442\u0440\u043e\u043a\u043b\u0456\u043d\u0456\u0447\u043d\u0456 \u0444\u0435\u043d\u043e\u0442\u0438\u043f\u0438 \u0442\u0430 \u0432\u0456\u0434\u043f\u043e\u0432\u0456\u0434\u044c \u043d\u0430 \u043b\u0456\u043a\u0443\u0432\u0430\u043d\u043d\u044f \u043f\u0440\u0438 \u0441\u0438\u043d\u0434\u0440\u043e\u043c\u0456 \u0414\u0440\u0430\u0432\u0435
\n\ud83d\udd39 \u0412\u0438\u0432\u0447\u0430\u0454 \u0434\u043e\u0432\u0433\u043e\u0441\u0442\u0440\u043e\u043a\u043e\u0432\u0456 \u0440\u0435\u0437\u0443\u043b\u044c\u0442\u0430\u0442\u0438 \u0437\u0430\u0441\u0442\u043e\u0441\u0443\u0432\u0430\u043d\u043d\u044f \u0441\u0442\u0438\u043c\u0443\u043b\u044f\u0446\u0456\u0457 \u0431\u043b\u0443\u043a\u0430\u044e\u0447\u043e\u0433\u043e \u043d\u0435\u0440\u0432\u0430 (VNS) \u0443 \u043f\u0430\u0446\u0456\u0454\u043d\u0442\u0456\u0432 \u0456\u0437 \u0441\u0438\u043d\u0434\u0440\u043e\u043c\u043e\u043c \u0414\u0440\u0430\u0432\u0435
\n\ud83d\udd39 \u041f\u0440\u043e\u0439\u0448\u043b\u0430 \u0441\u0442\u0430\u0436\u0443\u0432\u0430\u043d\u043d\u044f \u0437 \u043f\u0440\u0435\u0446\u0438\u0437\u0456\u0439\u043d\u043e\u0457 \u043c\u0435\u0434\u0438\u0446\u0438\u043d\u0438 \u0432 \u0435\u043f\u0456\u043b\u0435\u043f\u0442\u043e\u043b\u043e\u0433\u0456\u0457 \u0432 \u0426\u0435\u043d\u0442\u0440\u0456 \u043b\u0456\u043a\u0443\u0432\u0430\u043d\u043d\u044f \u0435\u043f\u0456\u043b\u0435\u043f\u0441\u0456\u0457 Cleveland Clinic
\n\ud83d\udd39 \u041d\u0430\u0440\u0430\u0437\u0456 \u043f\u0440\u043e\u0434\u043e\u0432\u0436\u0443\u0454 \u043a\u043b\u0456\u043d\u0456\u0447\u043d\u0443 \u0442\u0430 \u043d\u0430\u0443\u043a\u043e\u0432\u0443 \u043f\u0456\u0434\u0433\u043e\u0442\u043e\u0432\u043a\u0443 \u0432 Mayo Clinic (\u0414\u0436\u0435\u043a\u0441\u043e\u043d\u0432\u0456\u043b\u043b, \u0424\u043b\u043e\u0440\u0438\u0434\u0430, \u0421\u0428\u0410)
\n\ud83d\udd39 \u0427\u043b\u0435\u043d \u0440\u0435\u0434\u0430\u043a\u0446\u0456\u0439\u043d\u043e\u0457 \u043a\u043e\u043b\u0435\u0433\u0456\u0457 \u0436\u0443\u0440\u043d\u0430\u043b\u0443 Epileptic Disorders
\n\ud83d\udd39 \u041a\u043e\u043b\u0438\u0448\u043d\u044f \u0432\u0456\u0446\u0435\u0433\u043e\u043b\u043e\u0432\u0430 \u0421\u0435\u043a\u0446\u0456\u0457 \u043c\u043e\u043b\u043e\u0434\u0438\u0445 \u0435\u043f\u0456\u043b\u0435\u043f\u0442\u043e\u043b\u043e\u0433\u0456\u0432 \u041c\u0456\u0436\u043d\u0430\u0440\u043e\u0434\u043d\u043e\u0457 \u043f\u0440\u043e\u0442\u0438\u0435\u043f\u0456\u043b\u0435\u043f\u0442\u0438\u0447\u043d\u043e\u0457 \u043b\u0456\u0433\u0438 (YES-ILAE)<\/p>\n

\ud83c\udfa4 \u0422\u0435\u043c\u0430 \u0434\u043e\u043f\u043e\u0432\u0456\u0434\u0456:<\/p>\n

\u00ab\u0421\u0438\u043d\u0434\u0440\u043e\u043c \u0414\u0440\u0430\u0432\u0435: \u043f\u0440\u0430\u043a\u0442\u0438\u0447\u043d\u0438\u0439 \u043f\u043e\u0441\u0456\u0431\u043d\u0438\u043a \u0434\u043b\u044f \u043d\u0435\u0432\u0440\u043e\u043b\u043e\u0433\u0430 \u0434\u043e\u0440\u043e\u0441\u043b\u043e\u0457 \u043f\u0440\u0430\u043a\u0442\u0438\u043a\u0438\u00bb<\/p>\n

\u0421\u0443\u0447\u0430\u0441\u043d\u0456 \u0434\u0430\u043d\u0456 \u0441\u0432\u0456\u0434\u0447\u0430\u0442\u044c: \u0431\u0456\u043b\u044c\u0448\u0456\u0441\u0442\u044c \u043f\u0430\u0446\u0456\u0454\u043d\u0442\u0456\u0432 \u0456\u0437 \u0441\u0438\u043d\u0434\u0440\u043e\u043c\u043e\u043c \u0414\u0440\u0430\u0432\u0435 \u0434\u043e\u0436\u0438\u0432\u0430\u0454 \u0434\u043e \u0434\u043e\u0440\u043e\u0441\u043b\u043e\u0433\u043e \u0432\u0456\u043a\u0443. \u041f\u0440\u043e\u0442\u0435 \u0440\u0430\u0437\u043e\u043c \u0456\u0437 \u0432\u0456\u043a\u043e\u043c \u0437\u043c\u0456\u043d\u044e\u0454\u0442\u044c\u0441\u044f \u0456 \u0441\u0430\u043c \u0444\u0435\u043d\u043e\u0442\u0438\u043f \u0437\u0430\u0445\u0432\u043e\u0440\u044e\u0432\u0430\u043d\u043d\u044f, \u0430 \u043f\u043e\u0442\u0440\u0435\u0431\u0430 \u0443 \u0441\u043f\u0435\u0446\u0456\u0430\u043b\u0456\u0437\u043e\u0432\u0430\u043d\u0456\u0439 \u0434\u043e\u043f\u043e\u043c\u043e\u0437\u0456 \u0434\u043e\u0440\u043e\u0441\u043b\u0438\u0445 \u043d\u0435\u0432\u0440\u043e\u043b\u043e\u0433\u0456\u0432 \u0441\u0442\u0430\u0454 \u0434\u0435\u0434\u0430\u043b\u0456 \u0430\u043a\u0442\u0443\u0430\u043b\u044c\u043d\u0456\u0448\u043e\u044e.<\/p>\n

\u0423 \u0441\u0432\u043e\u0457\u0439 \u0434\u043e\u043f\u043e\u0432\u0456\u0434\u0456 \u043f\u0430\u043d\u0456 \u0410\u043b\u0456\u043d\u0430 \u0440\u043e\u0437\u0433\u043b\u044f\u043d\u0435:<\/p>\n

\ud83e\udde0 \u044f\u043a \u0437\u043c\u0456\u043d\u044e\u044e\u0442\u044c\u0441\u044f \u043a\u043b\u0456\u043d\u0456\u0447\u043d\u0456 \u043f\u0440\u043e\u044f\u0432\u0438 \u0441\u0438\u043d\u0434\u0440\u043e\u043c\u0443 \u0414\u0440\u0430\u0432\u0435 \u0437 \u0432\u0456\u043a\u043e\u043c;<\/p>\n

\ud83e\udde0 \u044f\u043a\u0456 \u00ab\u0447\u0435\u0440\u0432\u043e\u043d\u0456 \u043f\u0440\u0430\u043f\u043e\u0440\u0446\u0456\u00bb \u0432 \u0430\u043d\u0430\u043c\u043d\u0435\u0437\u0456 \u0434\u043e\u0440\u043e\u0441\u043b\u043e\u0433\u043e \u043f\u0430\u0446\u0456\u0454\u043d\u0442\u0430 \u043c\u0430\u044e\u0442\u044c \u0441\u043f\u043e\u043d\u0443\u043a\u0430\u0442\u0438 \u0434\u043e \u043f\u0440\u043e\u0432\u0435\u0434\u0435\u043d\u043d\u044f \u0433\u0435\u043d\u0435\u0442\u0438\u0447\u043d\u043e\u0433\u043e \u0442\u0435\u0441\u0442\u0443\u0432\u0430\u043d\u043d\u044f;<\/p>\n

\ud83e\udde0 \u044f\u043a \u043e\u043f\u0442\u0438\u043c\u0456\u0437\u0443\u0432\u0430\u0442\u0438 \u043c\u0435\u0434\u0438\u043a\u0430\u043c\u0435\u043d\u0442\u043e\u0437\u043d\u0443 \u0442\u0435\u0440\u0430\u043f\u0456\u044e;<\/p>\n

\ud83e\udde0 \u043a\u043e\u043b\u0438 \u0432\u0430\u0440\u0442\u043e \u0440\u043e\u0437\u0433\u043b\u044f\u0434\u0430\u0442\u0438 \u043d\u0435\u043c\u0435\u0434\u0438\u043a\u0430\u043c\u0435\u043d\u0442\u043e\u0437\u043d\u0456 \u043c\u0435\u0442\u043e\u0434\u0438 \u043b\u0456\u043a\u0443\u0432\u0430\u043d\u043d\u044f, \u0437\u043e\u043a\u0440\u0435\u043c\u0430 \u0441\u0442\u0438\u043c\u0443\u043b\u044f\u0446\u0456\u044e \u0431\u043b\u0443\u043a\u0430\u044e\u0447\u043e\u0433\u043e \u043d\u0435\u0440\u0432\u0430.<\/p>\n

\u0426\u0435\u0439 \u0432\u0438\u0441\u0442\u0443\u043f \u0441\u0442\u0430\u043d\u0435 \u043f\u0440\u0430\u043a\u0442\u0438\u0447\u043d\u0438\u043c \u0434\u043e\u0440\u043e\u0433\u043e\u0432\u043a\u0430\u0437\u043e\u043c \u0434\u043b\u044f \u043d\u0435\u0432\u0440\u043e\u043b\u043e\u0433\u0456\u0432 \u0434\u043e\u0440\u043e\u0441\u043b\u043e\u0457 \u043f\u0440\u0430\u043a\u0442\u0438\u043a\u0438 \u0442\u0430 \u0434\u043e\u043f\u043e\u043c\u043e\u0436\u0435 \u043f\u0440\u0438\u0432\u0435\u0440\u043d\u0443\u0442\u0438 \u0443\u0432\u0430\u0433\u0443 \u0434\u043e \u0449\u0435 \u043e\u0434\u043d\u0456\u0454\u0457 \u0432\u0430\u0436\u043b\u0438\u0432\u043e\u0457 \u043f\u0440\u043e\u0431\u043b\u0435\u043c\u0438: \u0434\u043e\u0440\u043e\u0441\u043b\u0456 \u043f\u0430\u0446\u0456\u0454\u043d\u0442\u0438 \u0456\u0437 \u0441\u0438\u043d\u0434\u0440\u043e\u043c\u043e\u043c \u0414\u0440\u0430\u0432\u0435 \u043d\u0435 \u043f\u043e\u0432\u0438\u043d\u043d\u0456 \u0437\u0430\u043b\u0438\u0448\u0430\u0442\u0438\u0441\u044f \u043f\u043e\u0437\u0430 \u0441\u0438\u0441\u0442\u0435\u043c\u043e\u044e \u0441\u043f\u0435\u0446\u0456\u0430\u043b\u0456\u0437\u043e\u0432\u0430\u043d\u043e\u0457 \u0434\u043e\u043f\u043e\u043c\u043e\u0433\u0438.<\/p>\n

\ud83d\uddd3 19 \u0447\u0435\u0440\u0432\u043d\u044f 2026 \u0440\u043e\u043a\u0443
\n\ud83d\udd54 17:00 \u0437\u0430 \u041a\u0438\u0454\u0432\u043e\u043c
\n\ud83d\udccd \u0414\u0436\u0435\u043a\u0441\u043e\u043d\u0432\u0456\u043b\u043b, \u0424\u043b\u043e\u0440\u0438\u0434\u0430, \u0421\u0428\u0410
\n\ud83c\udf0d \u041e\u043d\u043b\u0430\u0439\u043d<\/p>\n

\u0420\u0435\u0454\u0441\u0442\u0440\u0430\u0446\u0456\u044f \u0431\u0435\u0437\u043a\u043e\u0448\u0442\u043e\u0432\u043d\u0430:
\nhttps:\/\/docs.google.com\/forms\/u\/7\/d\/1k2nqf7-DtGas1BzV0iU-zgZB2dVZS6d5edEdZx8af_U\/edit?usp=drivesdk<\/a><\/p>\n

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\u041f\u0440\u043e\u0434\u043e\u0432\u0436\u0443\u0454\u043c\u043e \u0437\u043d\u0430\u0439\u043e\u043c\u0438\u0442\u0438 \u0432\u0430\u0441 \u0437\u0456 \u0441\u043f\u0456\u043a\u0435\u0440\u0430\u043c\u0438 Ukrainian Dravet Syndrome & SCN1A Forum 2026 \ud83c\uddfa\ud83c\udde6\ud83c\udf0d \u041f\u0440\u0435\u0434\u0441\u0442\u0430\u0432\u043b\u044f\u0454\u043c\u043e \u0441\u043f\u0456\u043a\u0435\u0440\u043a\u0443, \u044f\u043a\u0430 \u043f\u0440\u0438\u0432\u0435\u0440\u0442\u0430\u0454 \u0443\u0432\u0430\u0433\u0443 \u0434\u043e \u043d\u0430\u0434\u0437\u0432\u0438\u0447\u0430\u0439\u043d\u043e \u0432\u0430\u0436\u043b\u0438\u0432\u043e\u0457, \u0430\u043b\u0435 \u0447\u0430\u0441\u0442\u043e \u043d\u0435\u0434\u043e\u043e\u0446\u0456\u043d\u0435\u043d\u043e\u0457 \u0442\u0435\u043c\u0438 \u2014 \u0436\u0438\u0442\u0442\u044f \u0456\u0437 \u0441\u0438\u043d\u0434\u0440\u043e\u043c\u043e\u043c \u0414\u0440\u0430\u0432\u0435 \u0443 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[…]<\/p>\n","protected":false},"author":1,"featured_media":4560,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"site-sidebar-layout":"default","site-content-layout":"","ast-site-content-layout":"default","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"","ast-breadcrumbs-content":"","ast-featured-img":"disabled","footer-sml-layout":"","ast-disable-related-posts":"","theme-transparent-header-meta":"","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"set","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center 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