{"id":4258,"date":"2026-04-19T19:45:39","date_gmt":"2026-04-19T19:45:39","guid":{"rendered":"https:\/\/genepi.org.ua\/?p=4258"},"modified":"2026-04-19T20:18:25","modified_gmt":"2026-04-19T20:18:25","slug":"ukrainian-dravet-syndrome-scn1a-forum-2026","status":"publish","type":"post","link":"https:\/\/genepi.org.ua\/uk\/ukrainian-dravet-syndrome-scn1a-forum-2026\/","title":{"rendered":"Ukrainian Dravet Syndrome & SCN1A Forum 2026"},"content":{"rendered":"

Ukrainian Dravet Syndrome & SCN1A Forum 2026<\/p>\n

\u0412\u0456\u0434\u043a\u0440\u0438\u0442\u0430 \u0440\u0435\u0454\u0441\u0442\u0440\u0430\u0446\u0456\u044f \u043d\u0430 Ukrainian Dravet Syndrome & SCN1A Forum 2026 \u2014 \u043c\u0456\u0436\u043d\u0430\u0440\u043e\u0434\u043d\u0443 \u043e\u043d\u043b\u0430\u0439\u043d-\u043a\u043e\u043d\u0444\u0435\u0440\u0435\u043d\u0446\u0456\u044e, \u043f\u0440\u0438\u0441\u0432\u044f\u0447\u0435\u043d\u0443 \u043f\u0456\u0434\u0432\u0438\u0449\u0435\u043d\u043d\u044e \u043e\u0431\u0456\u0437\u043d\u0430\u043d\u043e\u0441\u0442\u0456, \u043f\u043e\u043a\u0440\u0430\u0449\u0435\u043d\u043d\u044e \u0434\u0456\u0430\u0433\u043d\u043e\u0441\u0442\u0438\u043a\u0438 \u0442\u0430 \u0434\u043e\u0441\u0442\u0443\u043f\u0443 \u0434\u043e \u043b\u0456\u043a\u0443\u0432\u0430\u043d\u043d\u044f \u0441\u0438\u043d\u0434\u0440\u043e\u043c\u0443 \u0414\u0440\u0430\u0432\u0435 \u0442\u0430 SCN1A-\u0430\u0441\u043e\u0446\u0456\u0439\u043e\u0432\u0430\u043d\u0438\u0445 \u0435\u043f\u0456\u043b\u0435\u043f\u0441\u0456\u0439.<\/p>\n

\ud83d\udcc5 \u0414\u0430\u0442\u0430: 19 \u0447\u0435\u0440\u0432\u043d\u044f 2026
\n\ud83c\udf0d \u0424\u043e\u0440\u043c\u0430\u0442: \u043e\u043d\u043b\u0430\u0439\u043d<\/p>\n

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\n\u043b\u0456\u043a\u0430\u0440\u0456\u0432 (\u043d\u0435\u0432\u0440\u043e\u043b\u043e\u0433\u0456\u0432, \u0434\u0438\u0442\u044f\u0447\u0438\u0445 \u043d\u0435\u0432\u0440\u043e\u043b\u043e\u0433\u0456\u0432, \u043f\u0435\u0434\u0456\u0430\u0442\u0440\u0456\u0432)
\n\u0433\u0435\u043d\u0435\u0442\u0438\u043a\u0456\u0432 \u0442\u0430 \u0434\u043e\u0441\u043b\u0456\u0434\u043d\u0438\u043a\u0456\u0432
\n\u043c\u0435\u0434\u0438\u0447\u043d\u0456 \u0443\u0441\u0442\u0430\u043d\u043e\u0432\u0438
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\n\u043c\u0456\u0436\u043d\u0430\u0440\u043e\u0434\u043d\u0438\u0445 \u0435\u043a\u0441\u043f\u0435\u0440\u0442\u0456\u0432<\/p>\n

\ud83d\udd2c \u041f\u0440\u043e\u0433\u0440\u0430\u043c\u0430 \u043a\u043e\u043d\u0444\u0435\u0440\u0435\u043d\u0446\u0456\u0457 \u0432\u043a\u043b\u044e\u0447\u0430\u0454:
\n\u043c\u0456\u0436\u043d\u0430\u0440\u043e\u0434\u043d\u0438\u0439 \u0435\u043a\u0441\u043f\u0435\u0440\u0442\u043d\u0438\u0439 \u0431\u043b\u043e\u043a \u0456\u0437 \u043f\u0440\u043e\u0432\u0456\u0434\u043d\u0438\u043c\u0438 \u0444\u0430\u0445\u0456\u0432\u0446\u044f\u043c\u0438
\n\u0433\u0435\u043d\u0435\u0442\u0438\u0447\u043d\u0438\u0439 \u0431\u043b\u043e\u043a (SCN1A \u0442\u0430 \u0456\u043d\u0448\u0456 \u0433\u0435\u043d\u0435\u0442\u0438\u0447\u043d\u0456 \u0430\u0441\u043f\u0435\u043a\u0442\u0438)
\n\u0432\u0438\u0441\u0442\u0443\u043f\u0438 \u0443\u043a\u0440\u0430\u0457\u043d\u0441\u044c\u043a\u0438\u0445 \u043b\u0456\u043a\u0430\u0440\u0456\u0432 \u0442\u0430 \u043a\u043b\u0456\u043d\u0456\u0447\u043d\u0456 \u043a\u0435\u0439\u0441\u0438
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\n\u043f\u0430\u043d\u0435\u043b\u044c\u043d\u0443 \u0434\u0438\u0441\u043a\u0443\u0441\u0456\u044e \u0437\u0430 \u0443\u0447\u0430\u0441\u0442\u0456 \u0434\u0435\u0440\u0436\u0430\u0432\u0438, \u043b\u0456\u043a\u0430\u0440\u0456\u0432, \u0444\u0430\u0440\u043c\u043a\u043e\u043c\u043f\u0430\u043d\u0456\u0439 \u0442\u0430 \u0413\u041e
\n\ud83d\udc49 \u041a\u043e\u043d\u0444\u0435\u0440\u0435\u043d\u0446\u0456\u044f \u0441\u043f\u0440\u044f\u043c\u043e\u0432\u0430\u043d\u0430 \u043d\u0435 \u043b\u0438\u0448\u0435 \u043d\u0430 \u043e\u0431\u043c\u0456\u043d \u0437\u043d\u0430\u043d\u043d\u044f\u043c\u0438, \u0430 \u0439 \u043d\u0430 \u0444\u043e\u0440\u043c\u0443\u0432\u0430\u043d\u043d\u044f \u0440\u0456\u0448\u0435\u043d\u044c \u0449\u043e\u0434\u043e \u043f\u043e\u043a\u0440\u0430\u0449\u0435\u043d\u043d\u044f \u0434\u043e\u0441\u0442\u0443\u043f\u0443 \u0434\u043e \u0434\u0456\u0430\u0433\u043d\u043e\u0441\u0442\u0438\u043a\u0438 \u0442\u0430 \u043b\u0456\u043a\u0443\u0432\u0430\u043d\u043d\u044f \u0432 \u0423\u043a\u0440\u0430\u0457\u043d\u0456.<\/p>\n

\ud83d\udccc \u0423\u0447\u0430\u0441\u0442\u044c
\n\u0423\u0447\u0430\u0441\u0442\u044c \u0443 \u043a\u043e\u043d\u0444\u0435\u0440\u0435\u043d\u0446\u0456\u0457 \u0454 \u0431\u0435\u0437\u043a\u043e\u0448\u0442\u043e\u0432\u043d\u043e\u044e \u0437\u0430 \u043f\u043e\u043f\u0435\u0440\u0435\u0434\u043d\u044c\u043e\u044e \u0440\u0435\u0454\u0441\u0442\u0440\u0430\u0446\u0456\u0454\u044e.<\/p>\n

\ud83d\udd17 \u0420\u0435\u0454\u0441\u0442\u0440\u0430\u0446\u0456\u044f \u0434\u043b\u044f \u0443\u0447\u0430\u0441\u043d\u0438\u043a\u0456\u0432:
\nhttps:\/\/docs.google.com\/forms\/d\/1k2nqf7-DtGas1BzV0iU-zgZB2dVZS6d5edEdZx8af_U\/edit<\/a><\/p>\n

\ud83c\udfa4 \u0414\u043b\u044f \u0441\u043f\u0456\u043a\u0435\u0440\u0456\u0432
\n\u0422\u0430\u043a\u043e\u0436 \u0437\u0430\u043f\u0440\u043e\u0448\u0443\u0454\u043c\u043e \u0435\u043a\u0441\u043f\u0435\u0440\u0442\u0456\u0432 \u043f\u043e\u0434\u0430\u0442\u0438 \u0437\u0430\u044f\u0432\u043a\u0443 \u043d\u0430 \u0443\u0447\u0430\u0441\u0442\u044c \u044f\u043a \u0441\u043f\u0456\u043a\u0435\u0440\u0456\u0432:<\/p>\n

\ud83d\udd17 \u041f\u043e\u0434\u0430\u0442\u0438 \u0437\u0430\u044f\u0432\u043a\u0443 \u044f\u043a \u0441\u043f\u0456\u043a\u0435\u0440:
\nhttps:\/\/docs.google.com\/forms\/d\/1v24JrQAZPvabsPvMX4KpkjEvFLe6w2s7JA9u1iRy2ms\/edit<\/a><\/p>\n

\u0423\u0441\u0456 \u0441\u043f\u0456\u043a\u0435\u0440\u0438 \u043e\u0442\u0440\u0438\u043c\u0430\u044e\u0442\u044c \u0441\u0435\u0440\u0442\u0438\u0444\u0456\u043a\u0430\u0442\u0438 \u0443\u0447\u0430\u0441\u043d\u0438\u043a\u0456\u0432 \u043c\u0456\u0436\u043d\u0430\u0440\u043e\u0434\u043d\u043e\u0457 \u043a\u043e\u043d\u0444\u0435\u0440\u0435\u043d\u0446\u0456\u0457.
\n\ud83e\udd1d \u041f\u0440\u043e \u0456\u043d\u0456\u0446\u0456\u0430\u0442\u0438\u0432\u0443
\n\u041a\u043e\u043d\u0444\u0435\u0440\u0435\u043d\u0446\u0456\u044f \u043e\u0440\u0433\u0430\u043d\u0456\u0437\u043e\u0432\u0430\u043d\u0430 \u0413\u041e \u00ab\u0414\u043e\u0441\u0442\u0443\u043f \u0434\u043e \u0436\u0438\u0442\u0442\u044f\u00bb \u0443 \u0441\u043f\u0456\u0432\u043f\u0440\u0430\u0446\u0456 \u0437 \u0443\u043a\u0440\u0430\u0457\u043d\u0441\u044c\u043a\u0438\u043c\u0438 \u0442\u0430 \u043c\u0456\u0436\u043d\u0430\u0440\u043e\u0434\u043d\u0438\u043c\u0438 \u043f\u0430\u0440\u0442\u043d\u0435\u0440\u0430\u043c\u0438 \u0437 \u043c\u0435\u0442\u043e\u044e \u0440\u043e\u0437\u0432\u0438\u0442\u043a\u0443 \u043c\u0435\u0434\u0438\u0447\u043d\u043e\u0457 \u0435\u043a\u0441\u043f\u0435\u0440\u0442\u0438\u0437\u0438 \u0442\u0430 \u043f\u043e\u043a\u0440\u0430\u0449\u0435\u043d\u043d\u044f \u044f\u043a\u043e\u0441\u0442\u0456 \u0436\u0438\u0442\u0442\u044f \u043f\u0430\u0446\u0456\u0454\u043d\u0442\u0456\u0432 \u0437 \u0440\u0456\u0434\u043a\u0456\u0441\u043d\u0438\u043c\u0438 \u0437\u0430\u0445\u0432\u043e\u0440\u044e\u0432\u0430\u043d\u043d\u044f\u043c\u0438.<\/p>\n","protected":false},"excerpt":{"rendered":"

Ukrainian Dravet Syndrome & SCN1A Forum 2026 \u0412\u0456\u0434\u043a\u0440\u0438\u0442\u0430 \u0440\u0435\u0454\u0441\u0442\u0440\u0430\u0446\u0456\u044f \u043d\u0430 Ukrainian Dravet Syndrome & SCN1A Forum 2026 \u2014 \u043c\u0456\u0436\u043d\u0430\u0440\u043e\u0434\u043d\u0443 \u043e\u043d\u043b\u0430\u0439\u043d-\u043a\u043e\u043d\u0444\u0435\u0440\u0435\u043d\u0446\u0456\u044e, \u043f\u0440\u0438\u0441\u0432\u044f\u0447\u0435\u043d\u0443 \u043f\u0456\u0434\u0432\u0438\u0449\u0435\u043d\u043d\u044e \u043e\u0431\u0456\u0437\u043d\u0430\u043d\u043e\u0441\u0442\u0456, \u043f\u043e\u043a\u0440\u0430\u0449\u0435\u043d\u043d\u044e \u0434\u0456\u0430\u0433\u043d\u043e\u0441\u0442\u0438\u043a\u0438 \u0442\u0430 \u0434\u043e\u0441\u0442\u0443\u043f\u0443 \u0434\u043e \u043b\u0456\u043a\u0443\u0432\u0430\u043d\u043d\u044f \u0441\u0438\u043d\u0434\u0440\u043e\u043c\u0443 \u0414\u0440\u0430\u0432\u0435 \u0442\u0430 SCN1A-\u0430\u0441\u043e\u0446\u0456\u0439\u043e\u0432\u0430\u043d\u0438\u0445 \u0435\u043f\u0456\u043b\u0435\u043f\u0441\u0456\u0439. \ud83d\udcc5 \u0414\u0430\u0442\u0430: 19 \u0447\u0435\u0440\u0432\u043d\u044f 2026 \ud83c\udf0d \u0424\u043e\u0440\u043c\u0430\u0442: \u043e\u043d\u043b\u0430\u0439\u043d \u041a\u043e\u043d\u0444\u0435\u0440\u0435\u043d\u0446\u0456\u044f \u0441\u0442\u0430\u043d\u0435 \u043e\u0434\u043d\u0456\u0454\u044e \u0437 \u043f\u0435\u0440\u0448\u0438\u0445 \u0441\u043f\u0435\u0446\u0456\u0430\u043b\u0456\u0437\u043e\u0432\u0430\u043d\u0438\u0445 \u043f\u043b\u0430\u0442\u0444\u043e\u0440\u043c \u0432 \u0423\u043a\u0440\u0430\u0457\u043d\u0456, \u0449\u043e \u043e\u0431\u2019\u0454\u0434\u043d\u0430\u0454: \u043b\u0456\u043a\u0430\u0440\u0456\u0432 (\u043d\u0435\u0432\u0440\u043e\u043b\u043e\u0433\u0456\u0432, […]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"site-sidebar-layout":"default","site-content-layout":"","ast-site-content-layout":"default","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"","ast-breadcrumbs-content":"","ast-featured-img":"","footer-sml-layout":"","ast-disable-related-posts":"","theme-transparent-header-meta":"","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"set","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center 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