Genetic Epilepsy Foundation (EDRPOU code 45916792) is a platform that brings together patient and civil society organizations, medical experts, and families to advocate for the rights of children and adults living with genetic epilepsies.
We work to improve access to modern diagnostics and treatment, raise awareness about genetic epilepsies in Ukraine, and develop an effective support system for patients and their families.
🎯 Our Mission
To improve the quality of life of people living with genetic epilepsies by expanding access to treatment, knowledge, and comprehensive support.
🌍 Our Vision
We aim to build a system where:
• genetic epilepsies are diagnosed in a timely manner
• patients have access to modern and effective therapies
• families are not left alone with their diagnosis
💡 Our Areas of Work
• advocacy for access to innovative medicines
• collaboration with international pharmaceutical companies
• support for patients and their families
• organization of educational events, conferences, and professional platforms
• development and strengthening of the patient community
🤝 We Are Open to Collaboration
We actively collaborate with:
• international organizations
• pharmaceutical companies
• healthcare professionals and researchers
• donors and charitable foundations
Together, we can improve the lives of people living with genetic epilepsies.