Ukrainian Dravet Syndrome & SCN1A Forum 2026
Registration is now open for the Ukrainian Dravet Syndrome & SCN1A Forum 2026 — an international online conference dedicated to improving awareness, diagnosis, and access to treatment for Dravet syndrome and SCN1A-related epilepsies.
📅 Date: June 19, 2026
🌍 Format: Online
The conference will serve as one of the first dedicated platforms in Ukraine bringing together:
clinicians (neurologists, pediatric neurologists, pediatricians)
geneticists and researchers
medical institutions
patient organizations
international experts
🔬 Conference program includes:
international expert sessions with leading specialists
genetics-focused block (SCN1A and related conditions)
presentations from Ukrainian clinicians and real-world cases
patient voice and lived experiences
panel discussion with policymakers, clinicians, pharma, and NGOs
👉 The forum aims not only to share knowledge, but to contribute to shaping solutions for improving access to diagnosis and treatment in Ukraine.
📌 Participation
Participation is free of charge upon prior registration.
🔗 Participant registration:
https://docs.google.com/forms/d/1k2nqf7-DtGas1BzV0iU-zgZB2dVZS6d5edEdZx8af_U/edit
🎤 Call for speakers
We also invite experts to apply as speakers:
🔗 Speaker application:
https://docs.google.com/forms/d/1v24JrQAZPvabsPvMX4KpkjEvFLe6w2s7JA9u1iRy2ms/edit
All speakers will receive certificates of participation in the international conference.
🤝 About the initiative
The conference is organized by Access to Life NGO in collaboration with Ukrainian and international partners, aiming to strengthen medical expertise and improve access to care for patients with rare diseases.